Update on micturition dysfunction

Well it has been some time since I updated this section.  I am doing so to share my experiences and to encourage others that though these changes are quite different from "normal life", they are no longer problematic and in fact are somewhat freeing - less stress and anxiety about planning the next pit stop.

Again, what follows is primarily for those with spinal cord injuries or bladder dysfunction who require intermittent catheterization......

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Disability thoughts - Thanksgiving and Confusion

Conundrum - co·nun·drum  -  from Merriam-Webster's Dictionary; first known use in 1645.

1: a riddle whose answer is or involves a pun
2 a : a question or problem having only a conjectural answer
   b : an intricate and difficult problem
 
The word to describe my current thoughts seems to have existed some 200 years prior to the invention of accident or disability insurance, but nonetheless that seems the best single word to sum up the situation not only for me, but for many other disabled friends.  
So yes, my title is correct; I approach this subject with great thankfulness and yet much confusion.

Though I would love to obtain a paying job, to do so threatens me with the loss of my medical insurance (Medicare) and my social security disability (SSD) monthly payments which allow us to stay in our home and meet expenses.  To be more specific, if I were to earn more than $750 per month, I would then lose my medical insurance and SSD (which alone is significantly more than $750/month). That is what I can legally earn per month, yet compared to others I know with spinal cord injuries or other disabilities, I have found their threshold levels are set even lower than mine!  Perhaps this is due to my pre-injury income compared to theirs and/or the number of years I had paid into Social Security, though I am not certain how the calculations are made.
 
Though extremely grateful for my medical insurance and SSD payments, it seems the ceiling of what I could earn per month ought to be raised, and not just for me, but for many others as well.  In doing so we could tap into a huge resource of talent, those disabled who can bring many skills back into the job market.
 
Read onward for more thoughts on this subject; my own recent personal experience, and a solution I have in mind.  Believe me, I have already begun to share some of these thoughts with my bicycling buddy from just up the street, Jay Inslee - US Congressman, who is currently running for governor of Washington state.
 
 

 

 

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Sometimes you just have to get... MAD!!

This past weekend a tragic accident occurred in Seattle that really upset me.  The more I think upon it, the more angry I get.  The accident claimed the lives of two innocent young adults, and was entirely caused by the unbelievably reckless driving of an apparently sober individual.  Turns out there is even more to the initial story that is confounding...

I doubt this link will last long, but you can read about it here - with my thoughts to follow.

 

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Speaking out - now available for hire!

Greetings!  As I have mentioned in a few previous entries, I enjoy speaking to a variety of audiences.  IF anyone can glean lessons from this story of my life as it unfolds, it gives me great satisfaction and has me believing that what occurred to me can really turn out for the greater good of humanity.

In the past few months I have spoken to our military regarding the behavior choices they face when both on and off duty.  Sharing the story of what happened to me hopefully gives us all reason to pause before we get behind the wheel of a car, especially if one has enjoyed a drink with friends.  Clearly the choices we make do impact the lives of others.  While there is great opportunity for good and bringing joy to others, there is also the potential to bring sadness and brokenness.  This of course applies not only to driving, but I am speaking here of how we treat each other - within our own families, and throughout our communities and cities.

After I spoke to several hundred at both the Puget Sound Naval Shipyard and Bangor SubBase, I was asked to speak to about 1000 of our local Bainbridge High School students during a drug and alcohol-free week.  In September of 2010, I spoke during all 3 Sunday morning services at NorthSound Church in Edmonds, WA.  The last of the 3 messages was recorded and can be found thru this link here.  The message is about 20 minutes long; I trust you will find it interesting.  You will need to download it and follow the instructions on the website.  Out of that opportunity has come yet another, to speak at a CRISTA service in of all places - Palm Springs, CA  this spring.

I am available to speak and share my journey.  I do not ask for much in the way of compensation, only to cover my travel expenses and to provide a small stipend.  I can speak with deep personal experience to the following topics.....

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Financial Update 2010 - adjustments to life

Normally this time of year I bring to you a bicycling update, though this year has been different than the last two years which were filled with a lot of great miles and season ending goals being met or exceeded.  More on that soon.

A primary focus has been on family sustainability; making good decisions and allowing us to live where we do for at least the near future.  Some of the "cutbacks" have been rather minor and possibly a bit humorous; like eliminating home delivery of milk and purchasing it in our local grocery.  I made the executive decision to move to a wonderful milk offered in glass bottles produced by grass fed happy cows thriving in Lynden, WA.  We have given up home delivery of milk by another good company - a decision my wife laments.  Yet I have reminded her, we have to make some sacrifices in order to still enjoy life as we know it; in this case we now save 20 cents per half gallon purchased!

Other changes have been more difficult, but in reflection, only more troublesome because they required a deviation from what had become our "standard of living" for the past 22 years.  So merely because I now drive a VW instead of an Audi (which I had really enjoyed the past 12 years), I can be quite thankful it still moves me from point A to B reliably and safely, with better gas mileage and is still a kick to drive!

What follows is then a brief update on life and finances.  I will blog about job opportunities and some medical health updates very soon (promise) ....

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Rough financial terrain - the current landscape

First, an apology - I am not the best of bloggers, which is perhaps obvious!  I am not inclined to feel like you, all of my readers, need to know every detail of our existence.  Yet during my recent bicycling rides I have been pondering just what honest truth I can share with each of you about this life as one with a spinal cord injury.

What follows then is, more or less, where we are at as a family in terms of finances following my injury.  You may have noticed I have until this point avoided this topic; yet lately a bit of financial angst has set in - so that, if nothing else, this writing gives me a chance to vent some of those frustrations.  This also will give me the chance to relate what I am trying to do about our ongoing financial shortfall, and (as writing can do) perhaps organize my thoughts around this topic.

Thanks for reading and for even possibly for considering my employment .... some ideas on that topic as you read the following.

 

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Cycling 2009 ends with an epic adventure

Well, now that we are officially into the 2010 cycling season (sort of anyway - waiting for the roads to dry, a bit of sun and temps above 45F), thought it was finally time to give a brief recap on the adventures of 2009.  Overall it was a great season with roughly 2500 miles logged on the road. 

As for what has now become my standard season ending ride, the goal was once again to complete 100 miles at the Dam2Dam Mike Utley Foundation bike ride the last weekend in September.  A fund raiser for spinal cord research and for other such beneficial projects to help those with SCI find life and hope once again.

My amazing wife Gwen, and faithful physical therapist Keith Heinzelman, were in attendance.  Our plans changed however the night before the ride when Gwen, carrying all my bags of gear with her vision blocked, sprained her foot on the curb at the Wenatchee Holiday Inn.  This shortened her ride for the next day due to swelling and pain with weight bearing....she was to miss out then on the adventure Keith and I were to have!

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Blog Orientation Essentials

This entry serves to give a quick orientation to recommended reading and audio/video links to those who might be visiting here for the first time.  I have listed things below in a chronological order so that you may understand where I have come from, up until this point in time.  You can get to those sections/links by clicking on the highlighted words.  The first two entries are articles I have written from within the blog itself.  Following that are a series of video and audio links. 

 

As for reading within this site I would recommend starting with The Trauma section, which will give you the details of my injury August 23, 2004 - including x-rays, the car, and initial recovery.

You may then read more about my recovery and rehabilitation via two articles in this section entitled Recovery, which also includes the statement I made to the fellow that hit me, prior to his sentencing.

At the one year anniversary of getting swatted I was fortunate to be able to finish the ride home by cycling past the spot of injury and making it safely back to homebase.  That story is nicely told in a 2 part video Bicycle Blues in the Key of E (be sure to watch it in HQ):  Part I  &  Part II.

Last fall I was asked to be the lead-off speaker at the Spine Symposium Conference - Improving Outcomes in Spinal Injury, held at the University of Washington/Harborview.  My 8 minute talk follows brief introductory comments by Dr. Jens Chapman, host of the symposium.  I think you will find the segment interesting.  Follow this link, then you will need to click on your choice of media player and speed connection to view the lecture.  My talk starts at about 2min 35sec into the program.

Late Spring 2009 I particpated in a local Ride of Silence, an event now held across the US, which is ridden in memory of those cyclists killed or injured by automobiles.  Our local newpaper presented this nicely done video segment of the ride.

In July 2009, Dave Beck of local NPR station, KUOW at 94.9 FM, contacted me for an interview about recovery from trauma, and to discuss life changes that occur after illness or trauma.  Though I certainly wish that what occured to me, now almost 5 years ago, never had happened - I can say for certain that my life has changed, and in many ways for the better since the injury.  Certainly not in a financial sense, but in my relationships, my faith, in the way I now approach life, the opportunities I have teaching medical students, and in working with those who have experienced trauma and loss.  You may listen to that 20 minute interview here, which is also available as a podcast.

Thank you for following along on this journey!  I pray you will find some material of encouragment to yourself or others.  Be well....

 

 

Spine Symposium talk on UW-TV

In October of 2008 I was honored to serve as the lead-off speaker at the Improving Outcomes in Spinal Injury conference, which was organized by Jens Chapman, MD of Harborview Medical Center.  Dr. Chapman is both a friend and my physician.  He is following me for spinal stenosis in my lumbar spine, a condition inherited, yet also accelerated in its advancement due to my injuries in 2004. 

After Jens gives a brief overview of the day, I provide a brief 8 minute presentation of my injuries and my perspective on how outcomes can be improved in spinal injury care.  That talk may be found on UWTV via this link.  You will then need to select your media player of choice and connection speed.  At that point a video stream of the presentation should open up for you.

Thanks for watching!

Ernie

Inspiration from various sources

What follows are a variety of quotations and comments from various sources which have inspired me and helped me in the recovery process.  My intent is to keep adding verses and quotes to this section as I come across new material that in turn my inspire you in your own personal journey. 

"Faith does not operate in the realm of the possible.  There is no glory for God in that which is humanly possible.  Faith begins where man's power ends."   -   George Muller

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